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YouTubeThe Children's Hospital of Philadelphia
Marina the Miracle: Johns Hopkins All Children's Performs 25 Surgeries on Giant Omphalocele Patient
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“A multi-institutional comparison of management techniques for infants with giant omphalocele"
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Meet our beautiful Friend of the Month, Evelyn 💖 Born a fighter, Evelyn defied the odds from day one. Diagnosed with a giant omphalocele at just 13 weeks gestation, she showed unmatched strength and resilience through every challenge. Though her time earthside was short, her impact was immeasurable. Evelyn brought joy, taught lessons in love and perseverance, and left a legacy that continues to inspire. We love you, Evelyn — you are Born Abel 🪽✨ #BornAbel #FriendOfTheMonth #OmphaloceleAwarenes
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Born with a Giant Omphalocele, Lee spent 3.5 months in the NICU before coming home to his twin brother James, big brother Fisher, and the family who adored him. Lee was pure sunshine — strong, joyful, and full of life. Nothing could slow him down, especially once he got his scooter. 🛴 He loved 90s country music, swinging on the back porch, and sharing snacks with his pets. Lee went to heaven on December 13, 2022. We miss him more than words can say — but we carry his light with us every day. We
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